Eastern Market Event Canceled

The whole reason we are having a virtual ADA Celebration is the impossibility of holding something safely, in public on or near July 26th. It was hoped that 65 days of events would give the pandemic enough time to level out and public events would be possible again on September 28th. While many communities are opening up, and many people are discovering protest as a form of civil disobedience for the first time in their lives, public gatherings remain unsafe for people with high-risk health concerns. This impacts the disability community disproportionately. So it is decided. it would be disastrous if we held an event that put so many of our community at risk or left out. Join us virtually and safety in celebrating everything disability is and will become while remembering the struggle it has taken to get here.

Bookshop

Bookshop forming!  Support the celebration by reading books by our presenters and recommended by our participants.  10% of sales comes to the ADA Celebration and 10% goes to support independent booksellers.  Your cost is the same, but your dollars are doing good work.

Send your suggestions for books we should include below.

This is the link to the bookshop: https://bookshop.org/shop/disability

Welcoming Event

July 26 at 2, we will welcome people to our ADA Celebration. Senator Gary Peters will do the honors. We will also recognize those people we have lost to COVID-19. Justice Richard Bernstein will  lead off with his memories of Congressman Isaac Robinson. isaacrobinsonIf you have lost a love one,  who is a member of the disability community, you are encouraged to post your memories here.  If you leave you contact information to confirm, we will also remember your loved one by name on July 26. .

Is Zoom Accessible??

New to Zoom? Need some disability access support?

ADA every Day Access Pass

Are you like me with a ton of Zoom meetings scheduled every week?  Are you scrambling to find the link to register or the email that sent you the password? We are going to make it easy. Get an ADA every Day Access (ADA) Pass.

Buy an ADA 30 shirt and you will be put on the ADA Pass List to receive an email everyday with the password of the day and a schedule of upcoming events.  All events are free and a pass is not required, but otherwise you must register for each event to get a password.

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The tshirt can be purchased at Teddy’s Ts.

Events for Kids – We Need You!

gecko2We need kids events! Not everyday, but a few a week.  Tuesdays at 11 Michigan Arts Access is aiming to have a kid friendly art activity.  We’re now looking for people with favorite children’s picture books that depict people with disabilities. Then have them read them aloud via  Zoom. A 10 minute disability history lesson.  Meet x, a disability hero of our time.  How many times have you heard someone says I grew up with no role models? Be a role model – come talk about something that happened to you kids will remember.

Gloria, The Gecko Attendant- A book reading by its author, Vanessa Castro.

ADA Tech & More Support Sessions

If you want your rights respected, you need to know what they are. The ADA will be the focus, but any law that impacts your ability to have the life you deserve will be discussed.

July 31st, 2PM

Supported Decision Making, the ruling in Olmstead vs. LC furthered the scope of the ADA, however the promise conferred cannot be realized if people with disabilities do not have access to the support they need to lead self-determined lives and make their own decisions. As a result of the Olmstead decision more people with increasingly diverse disabilities are living in the community and support needs to be innovative and responsive. Supported decision making is a nimble tool that provides opportunities for people experiencing a variety of disabilities to exert control in their lives. This session will introduce the principles of supported decision-making and explore the connection to this landmark civil rights law.

John McCarty is an active self-advocate.  He presents on disability issues to a wide variety of audiences throughout Georgia and the US.  John is a 2019-2020 SARTAC Fellow and also works with the Georgia Advocacy Office (Georgia’s Protection and Advocacy organization) on Supported Decision Making; and he serves on their Supported Decision Making Advisory Council.  Additionally, John is board member of ReClif Community, a nonprofit that aims to provide typical life experiences for individuals living with autism.  He also actively participates in and was a founding member of Uniting for Change, a statewide advocacy group.  John believes that all individuals with disabilities should have the opportunity and the support they need to direct all aspects of their lives.

Dana_LloydDana Lloyd currently serves as director of the Developmental Disabilities program at the Georgia Advocacy Office (Georgia’s Protection and Advocacy organization) and prior to that she worked with families’ combating poverty and homelessness. Her professional career began at Hope House Foundation in Norfolk, VA. During her time there, Dana provided leadership to the agency and direct support professionals as they supported people with I/DD to live in their own apartments and have access to the good things in life through valued social roles and contributing to their community. Dana is passionate about justice work and committed to building communities where we all flourish.

August 5, 2PM

EllisADA Title 1:  Managing Your Health Condition Workplace Accommodations

Sheryl Ellis has more than 20 years of experience in human resources. She is a recognized expert in Title I of the Americans with Disabilities Act (ADA).  She has provided HR services in a variety of industries including nonprofits, communications, IT, hospitality, and manufacturing, but it was only when she herself confronted health issues did she appreciate how little she knew about workplace accommodations.

Sheryl published Making It Work: Managing Your Health Condition Through ADA Workplace Accommodations (2020).

August 7, 2PM

Service Animals – Navigating Access to Work, Education, Health Care, Housing Transportation, Public and Private Services

Amy Maes, Associate Director for Disability Network Oakland & Macomb has been working with Michigan’s Disability Community for over 22 years.  Before working with DNOM, Amy served as the Leadership & Advocacy Consultant for Disability Network Michigan (DNM).  Amy is also the former Director of the Superior Alliance for Independent Living (SAIL) the CIL serving the entire Upper Peninsula.   Amy is also a practicing attorney licensed in the State of Michigan and served as Director of Litigation for Michigan Protection & Advocacy Services, Inc. (MPAS).

August 14, 2PM

ADA Title II, State and Local Governments.  This session will address the general non-discrimination requirements of Title II of the Americans with Disabilities Act (ADA) applying to state and local governments. The presenters will discuss the obligations for program access, effective communication, modifications in policies and procedures along with accessibility requirements. In addition, participants will have an opportunity to ask questions.

Peter Berg, Project Coordinator of Technical Assistance Great Lakes ADA Center has been coordinating and providing technical assistance as well as conducting training on various aspects of the ADA since he joined the Great Lakes Center in October of 2000.  He is a graduate of North Central College in Naperville, IL with a bachelor’s degree in History.  Prior to joining the Center he spent seven years with Dominick’s Finer Foods, the last two years as a Customer Service Manager.

Peter recently served as a member of the Illinois Attorney General’s Office Illinois Accessibility Code Task Force and is the former Chair of the Mayor’s Advisory Commission on Disability for the city of Naperville where he resides.  Peter was a 2010 recipient of the Chancellor’s Award of Merit and former Chair of the Chancellor’s Committee on the Status of Persons with Disabilities at the University of Illinois Chicago (UIC).  In June of 2017, he completed the ADA Coordinator Training Certification Program (ACTCP) through the University of Missouri- College of Human and Environmental Sciences, School of Architectural Studies.

Brad Hastings, Advocacy and ADA Coordinator
Disability Network West Michigan  was hired in the spring of 2018, and  has been working with disability advocates, business leaders, and local governments to improve accessibility and provide technical assistance on the Americans with Disabilities Act throughout Disability Network West Michigan’s 5 county region. He is a graduate of Michigan State University where he earned a bachelor’s degree in Anthropology, with a minor in Philosophy and Law. Prior to his time at Disability Network, Brad spent 5 years as the Community Food Programs Manager at TrueNorth Community Services, where he coordinated emergency food programs for low income individuals.

 

Our first of many art events – more will be added!

The arts are important to any community, but especially to the disability community. We will have arts of every kind – dance, poetry, mural making, films. Events will be interactive, performance, and/or theory. Geared to the young (at heart) to the seasoned professional.

Tuesday, July 28th, 2PM

small Headshot Petra Kuppers Gut BotanyPetra Kuppers, author of Gut Botany: using performance and poetry as disability culture methods. In this hour-long session, Petra will introduce viewers to her creative practice as a disability culture artist and a poet. Enjoy listening to a few poems from Gut Botany, a Made in Michigan poetry book from Wayne State University (2020 https://www.wsupress.wayne.edu/books/detail/gut-bota)August

Tuesday, August 4th, 2 PM

Daniel Cascardo’s  approach to art is to interpret life in a very positive and thought provoking manner through the use of uninhibited brush strokes, bright colors, patterns, symbols and various forms of nature, including fantastic birds and fish, that let your imagination soar. He will introduce to you his mural art, his method, and begin a project with you.

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Plan to download a section of an art piece (not the one above) to color in as you choose. Create one together as a family or  do multiples on your own.  Everyone welcome.

Send your finished work back by August 6th  via email They will be combined with others to make a mural. A big reveal will take place on August 11th.

Tuesday, August 11, 2PM

The big reveal! What did the work of many become when put together.

Tuesday, August 18, 2PM

disartJill Vyn and Chris Smit, DisArt

Deep topics for everyday understanding

Once a week learn about cutting edge academic and disability justice research straight from the people making these discoveries. Brought to you without jargon or need for former knowledge.  Nothing about us, without us. Ask questions and discuss.

Thursday, July 30, 7PM EST

Devva-in-RedWhat is Disability Studies? 

Devva Kasnitz, trained as a cultural geographer and a medical anthropologist. She has worked in the area of disability studies for the last 35 years. She is a founding member of the Society for Disability Studies and its current director and an adjunct professor at the City University of New York. She has published more than 50 books, chapters, and  articles. 

https://link.springer.com/book/10.1007/978-94-017-9984-3

Thursday, August 6th, 7PM EST

allies-and-obstaclesAllies and Obstacles: Disability Activism and Parents of Children with Disabilities.

Disability rights organizations often cast parents as adversaries: overprotective and clueless about how to best advocate for their children’s rights in a society that marginalizes the disabled. Parents may see disability rights activists as unrealistic warriors in a social justice fight they don’t want to join, and try to protect their kids from injury in that battle.Learn what anthropology can tell us about this tense relationship.

 
 
Pamela Block is an anthropologist at New York’s Stonybrook University. An expert in the lived experiences of people with disabilities across different cultures, Block has focused for several decades on how societies in Brazil, the U.S.A., and Canada differ in their treatment of people with disabilities. In recent years, she has expanded her study to how disability as a political identity intersects with other identities such as race, gender, and sexual preference. Block uses anthropology to place disability justice and identity into the larger context of social justice movements.
 

Allison Carey has been active in disability advocacy and politics her entire life.  She focuses on segregation of people with intellectual disabilities in schools and institutions along with the controversies over forced sterilization, eugenics, marriage and procreation, and protection from the death penalty. She is expert  in the impact of the Americans with Disabilities Act passed in 1990.

Richard Scotch is a  Professor of Sociology, Public Policy, and Political Economy at the University of Texas at Dallas. and has written on health care, education, and human services. A past president of the Society for Disability Studies,Scotch is the author of two books and numerous articles and monographs on social policy reform and social movements in disability, health care, education, and human services.
 

Monday, August 10th, 2PM

Ableism: The Causes and Consequences of Disability Prejudice

 
Michelle Nario-Redmond is  is a Professor of Psychology ableismat Hiram College, specializing in stereotyping, prejudice, and disability studies. Her research focuses on group identification and political advocacy, strategies of responding to prejudice, and the unintended consequences of simulating disability.  She is also a member of the band Swapmeet.
 

Thursday, August 13th, 7PM EST

Lydia X. Z. Brown is a disability justice advocate, Lydiaorganizer, and writer whose work has largely focused on violence against multiply-marginalized disabled people, especially institutionalization, incarceration, and policing. They are currently a Justice Catalyst Fellow at the Bazelon Center for Mental Health Law, providing legal representation and self-advocacy education to Maryland students with disabilities facing school pushout, disproportionate discipline, and criminalization. Lydia is also a past Visiting Lecturer at Tufts University, where they taught a course on critical disability theory, public policy, and intersectional social movements, and past chairperson of the Massachusetts Developmental Disabilities Council.
 
 

Wednesday, August 19th, 2PM EST

StevenBrown51TPzsOr9TL._SX331_BO1,204,203,200_Disability Culture 20/20

In the mid-1990s, I wrote this definition of “DisabilityCulture”: “People with disabilities have forged a group identity. We share a common history of oppression and a common bond of resilience. We generate  art, music, literature, and other expressions of our lives, our culture, infused from our experience of disability.  Most importantly, we are proud of ourselves as people with disabilities.  We claim our disabilities with pride as part of our identity. We are who we are:  we are people with disabilities.”

Thirty years later, in 2020, Disability Culture has evolved and continues to do so. With the impact of huge changes in all of our lives in 2020, this session will explore Disability Culture from its beginnings to its explosion within the era of social media to life in the year of the pandemic.

Steven E. Brown has worked in the field of disability
rights for several decades.In the 1980 a need for knowledge about the history, ideologies, and diverse expressions of people with disabilities, he and Lydia Gonzales Brown established the Institute on Disability Culture. It promotes pride in the history, activities, and cultural identity of individuals with disabilities throughout the world.
 

“The lessons are in the telling, they provide a framework and a dwelling.”  From the poem, “Tell Your Story,” by Steven E. Brown ©, All Rights Reserved, Institute on Disability Culture, 1994

 

Thursday, August 21

Disability Rights Denied,  the first disabled American Revolutionaries.   Laurel Daen will discuss the exclusion of disabled people from many legal and political rights (marriage, voting, property ownership, and more) around the time of the American Revolution. We’ll discuss how these exclusions were implemented and how disabled people resisted and fought for greater access and equality.

LaurelDaenLaurel Daen is a National Endowment for the Humanities Postdoctoral Fellow in Early American History and Culture at the College of William & Mary. She researches and writes about disability in American history, especially around the time of the American Revolution. Currently, she is finishing a book about disability and civil rights just after the nation’s founding. She is moving to Michigan this summer to join the University of Notre Dame as an Assistant Professor of American Studies.

Thursday, August 27, 2 PM EST

 
Jaipreet Virdi is a historian and professor at the JaipreetUniversity of Delaware. Deaf since age four, she focuses her research to examine how hearing loss has historically been viewed through medical and popular culture, and the different ways that technology impacts the lived experiences of disabled people. She is Board Member of the Disability History Association and currently manages the Association’s blog, All of Us. As an author, Virdi has published books, articles and popular essays on disability technology, deaf history, and medical care.
 
 
 

Wednesday, September 2, 2PM

 

“T4 Memorialization and the Holocaust in Germany Today”

 

 

April 27th Meeting Notes

We had an amazing meeting. So much energy.  18 people in all participated from 2 -4:45PM. 9 let me know they couldn’t make it.  This will include some follow-up from this week.
The plan is still to do ADA Everyday events from July 26th (the day the ADA was signed) until September 28th. We have Eastern Market reserved for September 29th, though it seems unlikely we can do a large event that soon. This is only part of what we discussed.
Need some tech savvy people to get together and discuss best practices, software, etc.
Need to find money!!!   We need to get people to commit to dates. We need to contract with ASl Interpreters, Captioners, and Audio Describers.
Some ideas /groups we are pursuing:
  • SportsAbility   sport demos, classes
  • Cheryl Angeleli – wheelchair ballroom dance
  • Damon Keith Law Center – ADA
  • Mi-Alliance for Families
  • Special Olympics  Inclusive Sports
  • Mi-Ahead  College Accommodations
  • Food Justice – Kelly’s Kitchen, Ava Haberkorn –
  • Theo What you need to know about going to college w/a disability
  • Jerryl  Access Health Care Settings
  • Dessa  Organizing Accessible Political Events
  • Baba His court case
  • Victor & Lillian  Blind Issues
  • Paulette DJ for dance
  • Service Animals
  • Effective Communication
  • Housing – Marc Craig Community Housing network
  • Absentee Voter Registration Drive
  • Transportation  SMART, Mike Patten
Films confirmed:
  • My Girl Story, Tameka Citchen-Spruce
  • Camp via Netflix Party, Nicole Newnham and James LeBrecht
  • Piss on Pity, the story of Adapt, Peter Grosz
 

Film Pursuing

  • Intelligent Lives —-Rich & Janice
  • Sins Invalid, New Day Films
  • When I walk, Jason DaSilva
  • CineAbility, Jenni Gold
 

Speakers confirmed(updated)

Speakers pursuing:
  • Leroy Moore
  • Jen Deerinwater
  • Corbett O’Toole
  • Lennard Davis
We have a working Google sheets – let me know if you are interested in accessing it.
Next Meeting May 11 at 2.
Excited yet???  Contact me with any questions or thoughts. Susan  248-767-2217